Why Some Families Have to Keep the Refrigerator Locked
For families that have someone in their family with Prader-Willi Syndrome, it is common to keep all places where food is located lock. Individuals with Prader-Willi Syndrome are determined to get food at any cost. Prader-Willi Syndrome is rare with only 1 person in every 12,000-15,000 have been diagnosed with this. Check out here at Helpfulforhomes website to get more.
It is a complex genetic disorder in chromosome 15. It leads to many physical and behavior issues. This includes being short in stature, medical obesity, speech articulation defects, sleep apnea, skin picking and many behavior problems. These behavior problems such as temper tantrums, violent outbursts, possessive, stealing and lying to get more food are common. Individuals with Prader-Willi Syndrome always want to eat and never get full. Without proper diet management, they would eat themselves to death. Also, they may be impervious to pain such as hot food.
Of course with this eating disorder often leads to more issues such as obesity which increases the odds of getting diabetes. All of these potential issues take special understanding to deal with individuals with this syndrome.
Individuals with Prader-Willi Syndrome need daily structure in their life. Making changes must be carefully thought out. Promising food as a reward can be a poor long-term decision. They cannot understand often about certain limits to them in the future. Many individuals with Prader-Willi Syndrome have learning disabilities also. They can still go to school, but patience is needed to help them with daily operations.
As a rule, there are some common strengths. They have an excellent memory. For example, if you tell them 3 months from now to remind you about fixing your bike, they will remember. Even with learning disabilities, many are able to use the computer or electronics remarkably well.
An episode of CSI involved an individual with this syndrome. He went to a buffet and ate him self to death. Also, the attraction to food was so strong; this person ate part of the menu.
Sometimes kindhearted strangers make the situation worst by giving them extra food. This only makes the condition worst and it is sure to cause an outburst when you try to take the food back.
If a child has Prader-Willi Syndrome, they don’t understand why they can’t be like their brother or sister. It takes a dedicated parent to take care of a child with this disorder.
The medical symptoms often lead to a shorter life span. There is no cure for this and advances have made this condition more manageable. Prader-Willi Syndrome may be unknown to the average person on the street, but it is real for a family member dealing with it daily.